Care Problems Of Parents Who Have Children With Gastrosto My At Home
Introduction: Children’s care who are fed with gastrostomy carried out by their parents at home via technological advances in the field of medicine. Feeding the child with gastrosto my is a verystringent, exhaustingandtiringsituationforparents. Thedifficultieswhichexperiencedduringthefeeding of child at homeare an importantproblemsforfamiliesandtheseproblemsnegativelyaffectthe life quality of thechildrenandtheirfamilies.
Purpose: Thisstudywasplannedtodeterminethecareproblems of parentswhohavechildwithgastrostomy at home, burdencare of theparents, andthefactorsthataffectthem.
Methods:Thisresearchimplementedas descriptive. The study participants were selected from Trakya University hospital, pediatric surgery unit in the city of Edirne at Turkey. The study was conducted with 34 parents who have child with gastrostomy, and who were willing to participate in the study. Data was collected between April 15th and July 15st 2017 via ‘Survey Form’ and ‘BurdenInterview (BI)’. The data was evaluated with SPSS 19.0 package programs. The data for the sociodemographic characteristics of participants was analyzed by number, percentage, or mean ± standard deviation. The relationships between some characteristic of parents and ‘BurdenInterview’ score was evaluated by student's t-test and chi-square test. p<0.05 was accepted as a statistical significance value.
Results:The mean age of the children was 9.91±5.26,duration of gastrostomy was 4.65±2.64 years. more the participants (94.1%) were mothers and 58.8% of children were male, 61.8% of mothers-fathers graduated from primary school, 76.5% have nuclear family structure. More of parents (94.1%) were taken education about care and use of gastrostomy. Parents’ BI score was 35.20±10.54. It was found that parents who experienced leaking at tube site, parents who do not know what to do ıf you have problems about gastrostomy and parents who experienced problems related gastrostomy had high‘Burden Interview’ scores (p<0,05). Parents who intervened yourself to problems related gastrostomy, who have nuclear family structure, who are mother, mother who have primary school degree had medium ‘BI’ score (p<0,05).
Conclusion: Parents burden interviews score was affected by family structure, type of problems that parents experienced gastrostomy at home, status ofintervention yourself to problems related gastrostomy, mothers’education level. Parents who had a nuclear family, mother who had primary school level, who experienced problems related leaking at the tube site, who intervened yourself problems related gastrostomy and parents who do not know what to do if you have problemshave high‘BI’ score. More of the parents were taken education about gastrostomy care and use before discharge.We recommend that education should be given to parents with simulation models to minimize problems and children and their parents should be followed regularly at home.
Key words - Burden care, gastrostomy, nurses, caregiving