Paper Title
Determination of Relationship Between Disease Managements and Perception of Nursing Support of Parents Whose Children are Monitored in Intensive Care Unit
Abstract
The research was carried out as a descriptive study to specify relationship between nurse support perception of parents whose children in intensive care unit and disease managements. The universe of the research was formed by the parents of 150 children who stay in the pediatric intensive care of Şişli Hamidiye Etfal Education and Research Hospital of the last one year. The sample size of the study was determined as 108 parents. The data obtained from the study were transferred to the SPSS 21.0 package program, and examined using appropriate statistical analyzes. The majority of interviewed parents are mother, 34.2% are 39 years and older. 30.6% of parents are post-graduated. 55,6% of parents stated that they didn’t work. 56,5% of parents stated that they get support from their family members. Child Chronic Disease Management Toll (CPMT) of interviewed parents’ sub-dimension of “Disease management and daily life of child” is 3,00±0,64, sub-dimension of “Life difficulties and disease effects” is 3,79±0,63, sub-dimension score average of “Parental agreement” is 3,72±0,78. The difference between children’s gender, time of diagnosis, experience of staying in hospital, parents’ age, place where they live, employment status, gender, knowledge about disease and CPMT three sub-dimension score averages is nonsensical as statistical (p>0,05).Moreover, the difference between parents’ educational background, family type, income status, another patient, status of living elder or younger children, the effect of the disease on the economic situation, the factor of getting support from family member and social environment and sub-dimension score averages is meaningful (p<0,05). Nurse Parent Support Tool (NPST) score average is 3,73±0,82. The differences among children’s gender, age group, interval since diagnosis, experience of staying in hospital are nonsensical (p>0,05). While the difference between interview parents’ gender, age group, employment status, social security, income status and NPST score average is nonsensical; the deference between interview parents’ educational background, knowledge about disease, the status of getting support from family member and social environment and NPST score average is meaningful (p<0,05).
As NPST predictor, CPTM and three sub-dimensions of the scale explains 55,5% of total NPST score. This conclusion shows that according as perceived nurse support increases, the disease managements of parents whose children are monitored in intensive care unit increase as well.
Keywords - Parents, Intensive care, Nurse support, Disease management.